Meeting Wed, 01/08/2025 - 12:00 Rare Disease Council Meeting Information

Date
Media
Pharmacy January 2025
Edit Implementation Schedule for January 2025
Gene Therapies for Sickle Cell Disease and Beta-Thalassemia Proposal January 2025
Complement Inhibitors Systemic Proposal January 2025
Fabhalta NDFB January 2025
Duchenne Muscular Dystrophy Proposal January 2025
Duvyzat NDFB January 2025
Enzyme Deficiency Select Agents Proposal January 2025
Aqneursa NDFB January 2025
Miplyffa NDFB January 2025
Lenmeldy Proposal January 2025
Lenmeldy NDFB January 2025
Myelodysplastic Syndromes Proposal January 2025
Rytelo NDFB January 2025
Agenda
RDAC Agenda January 2025- *WebEx Only due to inclement weather*
Minutes
RDAC Minutes January 2025 Draft
Criteria
Page
Rare Disease Council Meeting Information