Meeting Wed, 10/08/2025 - 12:00 Rare Disease Council Meeting Information

Date
Media
Rare-Disease-Minutes July 2025 Draft
Pharmacy October 2025
Pharmacy Benefit Administration Services October 2025
Edit Implementation Schedule for October 2025
Sickle Cell Disease Annual Presentation October 2025
Gene Therapies for Sickle Cell Disease and Beta-Thalassemia Proposal October 2025
Sickle Cell Disease Proposal October 2025
Encelto Implant Proposal October 2025
Encelto (revakinagene taroretcel-lwey) NDFB October 2025
Endothelin Receptor Antagonists for IgA Nephropathy Proposal October 2025
Vanrafia (atrasentan) NDFB October 2025
Epidermolysis Bullosa Proposal October 2025
Zevaskyn (prademagene zamikeracel) NDFB October 2025
Neonatal Fc Receptor Antagonists Proposal October 2025
Imaavy (nipocalimab-aahu) NDFB October 2025
NMOSD Proposal October 2025
Uplizna (inebilizumab-cdon) NDFB October 2025
Vykat XR Proposal October 2025
Vykat XR (diazoxide choline) NDFB October 2025
Agenda
RDAC Agenda October 2025-Virtual Only
Minutes
Rare Disease Advisory Council Minutes October 2025 Approved
Criteria
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Rare Disease Council Meeting Information